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Sunday, April 28, 2013

Heartbreaking News : We Lost The Twins

"Bismillahirrahmanirrahim.
We WERE having Monoamniotic-Monochorionic (MoMo) twins, (identical twins that share same amniotic sac and placenta), which is "extremely" rare and high risk (50-50, mom and babies). Monoamniotic twins are rare, with an occurrence of 1 in 35,000 to 1 in 60,000 pregnancies, so I should thank God for being selected, for at least, by 13 weeks period of time. Allah is Great! Dengan kuasa Allah juga, we lost our babies at 13 weeks, where both stopped growing at 8 weeks and 7 weeks, each. Though we are still recovering from the heartbreak, we accept what has written and redha akan hikmahNya. DaripadaNya mereka datang, kepadaNya mereka pergi. Without knowing the gender, we believe that Adam is created first, thus, may
 Nuh Rafael and Hud Rafael
wait for us, right at Jannah's doorstep. Al-fatihah. And we will not stop trying. InsyaAllah. Semoga Allah perkenankan doa-doa kami."
-Momo and Popo-
Note : Post on babies chrono will be out soon. May this story remains as beautiful memory for us.
UPDATE! Part One : The Day I Found That I Am Pregnant ( Click HERE )
UPDATE! Part Two : The Day I Found That I Lost The Twins. ( Click HERE )
Monoamniotic twins

Pic 1 : Normal. Most safe twins. Non-identical.
Pic 2 : Seldom. Quite unsafe but still deliverable. Identical.
Pic 3 : Rare. 50-50. One could get less nutrient. One die, another could follow. Identical. (This is my twins.)
Pic 4 : Abnormal. Most unsafe. Conjoint. No one wants this to happen.

Monoamniotic twins are identical twins that share same amniotic sac within their mother’s uterus.[1] Monoamniotic twins are always identical, and always monochorionic as well (sharing the same placenta), and are sometimes termed Monoamniotic-Monochorionic ("MoMo") twins.[1] They also share the placenta, but have two separate umbilical cords. Monoamniotic twins develop when an embryo does not split until after formation of the amniotic sac,[1] at about 9 days after fertilization.[2] Monoamniotic triplets or other monoamniotic multiples[3] are possible, but extremely rare.[1] Other obscure possibilities include multiples sets where monoamniotic twins are part of a larger gestation such as triplets, quadruplets, or more.

Occurrence
Monoamniotic twins are rare, with an occurrence of 1 in 35,000 to 1 in 60,000 pregnancies,[1] corresponding to about 1% of twin pregnancies.[3]

Complications
The survival rate for monoamniotic twins has been shown to be as high as 81%[4] to 95%[5] in 2009 with aggressive fetal monitoring, although previously reported as being between 50%[1] to 60%.[3] Causes of mortality and morbidity include:
  • Cord entanglement: The close proximity and absence of amniotic membrane separating the two umbilical cords makes it particularly easy for the twins to become entangled in each other’s cords, hindering fetal movement and development.[3] Additionally, entanglement may cause one twin to become stuck in the birth canal during labor and expulsion.[1] Cord entanglement happens to some degree in almost every monoamniotic pregnancy.[1]
  • Cord compression: One twin may compress the other’s umbilical cord, potentially stopping the flow of nutrients and blood and resulting in fetal death.[1][3]
  • Twin-to-twin transfusion syndrome (TTTS): One twin receives the majority of the nourishment, causing the other twin to become undernourished. TTTS is much more difficult to diagnose in monoamniotic twins than diamniotic ones, since the standard method otherwise is to compare the fluid in the sacs. Rather, TTTS diagnosis in monoamniotic twins relies on comparing the physical development of the twins.[1]
Diagnosis
Ultrasound is the only way to detect MoMo twins before birth.[3] It can show the lack of a membrane between the twins after a couple of weeks' gestation, when the membrane would be visible if present.[3]

Further ultrasounds with high resolution doppler imaging and non-stress tests help to assess the situation and identify potential cord problems.[3]

There is a correlation between having a single yolk sac and having a single amniotic sac.[1] However, it is difficult to detect the number of yolk sacs, because the yolk sac disappears during embryogenesis.[1]

Cord entanglement and compression generally progress slowly, allowing parents and medical caregivers to make decisions carefully.[3]

Treatment
Only a few treatments can give any improvements.

Sulindac has been used experimentally in some monoamniotic twins, lowering the amount of amniotic fluid and thereby inhibiting fetal movement. This is believed to lower the risk of cord entanglement and compression. However, the potential side effects of the drug have been insufficiently investigated.[1][3]

Regular and aggressive fetal monitoring is recommended for cases of monoamniotic twins to look for cord entanglement beginning after viability. Many women enter inpatient care, with continuous monitoring,[1] preferably in the care of a perinatologist, an obstetrician that specialises in high risk pregnancies.[3]

All monoamniotic twins are delivered prematurely by cesarean section, since the risk of cord entanglement and/or cord compression becomes too great in the third trimester. The cesarean is usually performed at 32, 34 or 36 weeks.[3] Many monoamniotic twins experience life-threatening complications as early as 26 weeks, motivating immediate delivery. However, delivery around 26 weeks is associated with life-threatening complications of preterm birth.[1] Steroids may be administered to stimulate the babies' lung development[3] and decrease the risk of infant respiratory distress syndrome. Vaginal birth rather than cesarean section causes cord prolapse, with the first baby delivered pulling the placenta shared with the baby being left inside.


23 holler:

DJ said...

Al-Fatihah...InsyaAllah, Allah knows the best for us...Ada hikmah yg menanti...sabar banyak2...ada rezeki nanti tu..insyaAllah... =)

PM said...

Al-Fatihah, takziah... jaga kesihatan ye, moga cepat sembuh. InsyaAllah ada rezeki lain yg lebih baik lepas ni.

firDEE said...

Hi dear,
Lama tak jenguk blog u,since i pun bz dengan baby..my blog? Lagilah tak ber update...huhu!
Takziah untuk u n hubby... AlFatihah...be strong...Jangan putus asa, insha Allah ada rezeki untuk you nanti..

eKa said...

Al fatihah. Be strong.ada hikmah apa yg terjadi.

Farikica said...

The deepest condolence to u n hubby, be strong! been through the same situation, 6 months though...:(
It's hard to swallow but like u said, never stop trying... Insyaalah, ada rezeki...

*take care!

BibiErr Karim said...

Al-Fatihah. Takziah Biqque, husband & family. Insha Allah, Dia Yang Maha Merancang pasti akan lebih banyak hikmah menanti. Sabar. Berat bahu yang memikul, diharap doa & kata semangat from the people around u will bring comfort & peace.

~Beb~ said...

Innalillah and alfatihah..

Banyak2 kan bersabar. Just be strong and never give up yeh? Penah jugak rasa mcm ni 2x. Banyak hikmah kenapa diuji hari ni. Allah maha mengetahui.

Pantang elok2 k?

abbazsmakl@gmail.com said...

salam biq,

takziah.

be strong ok. adalah plan Allah tu.

SUhaz sulaiman said...

salam,

takziah,,, Allah's plan is the best...

don't give up....

Liz said...

Al-Fatihah. Takziah Biqque. Banyakkan berehat. Allah lebih mengetahui. It's heartbreaking tapi ingatlah selalu bahawa mereka akan menghulurkan tangan kepada kalian di sana nanti.

Zara AB said...

My deepest condolence to both of you. Al-Fatihah to both of your twin.

* Hope you're doing great at this point of time.

Ann@zanyra said...

Alfatihah..takziah biqque & hubby..percaturan Allah itu pasti ada hikmah dan kebaikkan utk hambaNYA.

Tc:)

anakomak said...

Takziah biqque n hubby,
Everyday ternanti2 cerita perkembangan u n babies...

Sorry to hear u lost them ..
Be strong k ...

Liz said...

Innalillah, kuatkan semangat..awk bertuah dapat dikurniakan keseronokan dan rezeki walaupun sekejap. Saya tumpang bersedih dgn kehilangan awk. Saya doakan awk murah rezeki dan dikurniakan kesihatan yg baik. harap jgn putus asa

Hulubalang said...

Takziah and be strong.

Diana Diane Teo said...

I am truly so sad for your lost. Be strong, Biqque. Do take care of yourself.

Orga said...

takziah biqque...alfatihah...

niL said...

Takziah Biqque!

raie said...

Takziah biqque.. raie tumpang sedih.. Al-fatihah...

Supermeng Malaya said...

Akum..

Sorry aku baru terbaca ni. Takziah. Semoga korang berdua byk2 bersabar..

Be strong !

Zilla said...

Al-Fatihah dan salam takziah..take care,biqque

Anash said...

biqque n shahrul,

BE STRONGER...because both of you are strong.

*Al-Fatihah*





zette said...

takziah... inshaAllah.. anak itu rezeki, rezeki itu di tanganNya.. minta padaNya.. jgn putus asa.. saya doakan yang terbaik dan be strong girl~

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